Call Toll Free

1-866-846-1600

Knowledge Nurtures Hope.
Support Myocarditis Foundation

The Myocarditis Foundation: Mission Statement

The Myocarditis Foundation, MF, is a private, non-profit organization which was established in December of 2005 when it received IRS 501(c) 3 approval. The organization is dedicated to providing accurate and up-to-date information to medical professionals, patients and their families, and to the scientific advancement of both the diagnosis and treatment of the disease with the goal of saving more lives. In order to accomplish these goals, the MF plans to:

• Sponsor conferences and lectures directed to both the public and to physician groups that deal with myocarditis, its causes, symptoms, diagnosis and treatment.
• Serve as a clearinghouse of information about myocarditis, by developing educational materials, pamphlets, and publications for use by the public, families and physicians.
• Maintain a website devoted to educating the public about myocarditis. Information on the site will be relevant to families and professionals alike and will provide a link to other relevant websites with additional information.
• Provide research grants to organizations or to individuals to conduct research into myocarditis, in an effort to further scientific knowledge of the disease.
• Maintain a listing and MF contact on The National Organization for Rare Diseases database (sponsored by NORD). The National Organization for Rare Disorders database requires that for a disease to be listed, it must affect fewer than 200,000 people in the United States. NORD serves as the primary non-governmental clearinghouse for information on rare disorders.

Board of Directors

Leslie T. Cooper, M.D., MF President, is a Professor of Medicine and
a cardiologist at the Mayo Clinic in Rochester, MN, who has a longstanding
interest in treating myocarditis. He edited the textbook, Myocarditis: From
Bench to Bedside, and leads several clinical studies on the diagnosis and
treatment of myocarditis.

Candace C. Moose, MF Secretary/Treasurer, is a Giant Cell Myocarditis survivor and heart transplant recipient. She is a retired nurse, wife, mother
and grandmother, a speaker and advocate for organ donation and is also
the author of the book, The Grateful Heart: Diary of a Heart Transplant.

Mario C. Deng, M.D. is the Director of Cardiac Transplant Research at
New York Presbyterian Hospital/Columbia. He is an advanced heart failure
and transplantation cardiologist. Additionally, he has authored many scientific
publications and most recently served as a board member of the International
Society of Heart and Lung Transplantation.

James A. Moose, MBA, is currently Senior Vice President at Talecris
Biotherapeutics in Research Triangle Park, North Carolina. Mr. Moose has had
a long and varied career in the pharmaceutical industry. He is the husband of
GCM patient and board member, Candace Moose.

Jeff S. Grant, board member, is a computer programmer, and a Giant Cell Myocarditis patient, currently undergoing treatment. Mr. Grant designed and maintains the gcminfo.org website which provides information about the disease and a chat room for patients and their families to share their concerns and experiences.

Medical Advisory Board

Sources of Funding

The Myocarditis Foundation is funded through corporate grants, philanthropic foundations, company matching programs, groups and individuals, fundraising events, and patients and families who have lost loved ones to the disease. Memorial and honorary gifts are graciously acknowledged and accepted. Donations can be made through Vehicles for Charity or through Pay Pal for online donations. or sent directly to the Foundation at : Myocarditis Foundation, 2201 River Road, #3401, Point Pleasant, NJ 08742. Please call the office to discuss planned giving opportunities, legacy gifts and gifts of securities at 732-295-3700.

Financial Information